The worst thing about being OK is that no one ever asks if you're ok.I’m exhausted.

That type of exhaustion that you feel in your bones. You wake up in the morning, and before you even get out of bed, you’re exhausted.

I feel like all I’ve done for the last twelve months, since we got our diagnosis, is worry and wait. Wait and worry. Waiting for services, for therapists, for appointments. Waiting to be able to access Early Childhood Intervention Services. Worrying about the choices I’m making. Is this the right occupational therapist for her? The right speech pathologist? Am I spending her funding money wisely?

As the money slowly diminishes, I have more decisions to make. What does she need more? OT or Psych? Or something I’m missing entirely? Did I do the right thing, throwing everything I could at her in the first twelve months? What if the money runs out, what if we can’t pay for the services she needs in the future, because I am spending too much of her funding now?

Who the hell am I to even be making these decisions? I’m not an expert, I don’t know what I’m doing. I feel like I was hit with a diagnosis, given some money, and told to go away and figure it out.

More decisions. Which kindergarten is best for her? Wait, never mind kindergarten, which school will be best for her? I lay in bed and cried the other night, because I didn’t have the foresight to put her name on a waiting list at birth, for a school I didn’t even know existed at the time. What if that was THE school? The school she would have thrived at?

What if every decision I am making is wrong? Who am I to be making decisions that affect another persons entire life? I spent the better part of thirty years making wrong decisions about my own life, and made a complete and utter wreck of it.

I feel like I am carrying the weight of Milla’s future on my shoulders. And every day, as I face the challenges of parenting a child with autism; the meltdowns, the anxiety, the irrationality, the obsessive compulsiveness, I’m doing it dragging this heaviness around with me.

I feel like I’m fractured into tiny pieces, and I’m trying to hold them all together. As one piece falls, I go to catch it, and more pieces fall from where I moved my hand from.

I’m exhausted.

07 comments on “Exhausted.

  • Elephant's Child , Direct link to comment

    Time to call for help for you. Loudly.
    You have a very big weight and a lot of responsibility – but you are not superwoman. And don’t need to be.
    I doubt that there is a parent anywhere who has never made a decision which they question, and later, with the benefit of hind-sight decide is wrong.
    First and foremost – look after yourself, so that you can continue to give MIla the love and support she needs.

  • Kate , Direct link to comment

    There is never a right or wrong answer but there is always one tool ‘trust’. Trust yourself, when your heart is where it needs to be, and clearly it is, you know you will make the right choices. Perhaps now is a time to rest and just be together. The answers will come…sometimes when we stop searching. Your doing an amazing thing for your daughter and applying all the lessons you ve learnt to make her life richer. Trust. Xx

  • Dorothy , Direct link to comment

    I understand the exhaustion and self-doubt. Sometimes we just need to give ourselves a break and start believing that we’re doing the best you can. I’m working on it and maybe you can too?
    Dorothy recently posted…There is a change comingMy Profile

  • Deb - An Inspirational Journey , Direct link to comment

    Thinking of you. What an impossible situation to be in. I’m sure you are doing the best you can. I’m reminded of something that was said to me ‘you were born to be their mother and you ARE strong enough to handle this’ Hang in there girl and all the best for the skydive! xo
    Deb – An Inspirational Journey recently posted…What a difference a year makes.My Profile

  • Louie , Direct link to comment

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    Louie recently posted…LouieMy Profile

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